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Audiology - an unexpected update

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Buzzing hearing aids - mini appointment


Very brief audiology appointment this morning as one of his hearing aids has been buzzing a bit. I thought it might be the tubes needing changed or possibly the moulds as they have started to not always sit great. Tubes got changed in any case and we have an appointment in 4 weeks to do a full hearing test and recalibrate his hearing aids for the first time since he got them in March (we'll also cast new moulds just to make sure they sit right as it may be a while till we get seen again). 

I had a call from an ENT surgeon (ear/nose/throat) last week as well. His most recent sleep study had been much better than the one we did last January which had been very concerning, but he was also super sick at the time. Problem is he just seems to have a permanent cold, sometimes it's light other time bad - I mean we're grateful we've avoided worse infections so far this year but it's still exhausting for him. Anyway the latest sleep study still shows some abnormalities and I'm sure he pauses his breathing for a second or two sometimes when he sleeps which is an indicator of sleep apnoea (very common in kids with achondroplasia). I enquired if we'd need to do a hospital sleep study but in his opinion he sees easier results to read at home as the child is more relaxed and likely to sleep well. 

The surgeon didn't feel the more recent results were worrying enough for any immediate intervention but he wants to know how Elis' glue ear is getting on as if it's worsened and grommets come up for discussion again he'd prefer to consider taking his adenoids out at the same time. He obviously needs to see Elis in person too but we both agreed it was better to have an up to date hearing test done before to aid us in our decisions going forward. Then we'll see if both procedures are needed or just one or neither. 

There's plenty of info on the blog of our journey so far with audiology and sleep studies, just head over to the dwarfism awareness page. As always I'll update on here when I've got more to share in case it can help anyone else.




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