I thought I'd make a page with direct links to posts regarding restricted growth for easy access. Hopefully it will be helpful to at least one new mother out there and fingers crossed help raise awareness as well. I have listed them in chronological order if you want to be able to follow our journey with Elis.
Other helpful websites:
UK (more will be added over time as well as worldwide links)
- October is Dwarfism Awareness Month
- Achondroplasia diagnosis
- Caring for a baby with achondroplasia
- A feature to love, trident hands
- The importance of a little independence
- Acceptable terminology
- The clothes struggle - altering baby clothes
- Weaning a baby with achondroplasia
- Home sleep study / Nocturnal pulse oximetry (sleep apnoea)
- Why this photo of the baby is so important
- I'm small but...
- Paediatric appointments & achondroplasia growth charts
- Audiology: VAR, tympanometry and glue ear
- Audiology follow up appointment
- Scandi clothes recommendations that also are suitable for kids with achondroplasia
- Hearing aids & Audiographs - glue ear hearing loss
- DSA Virtual Highland Games
- Dwarfism awareness with Halloween spirit - adapting clothing
- Buzzing hearing aids - mini audiology appointment
- Joint hypermobility & achondroplasia
Other helpful websites:
UK (more will be added over time as well as worldwide links)
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