Chasing Butterflies Daily

So a few months ago we went to get Elis' hearing checked after getting his grommets in. His hearing in his left ear had returned to pre grommets and wasn't good at all, the audiologist couldn't see any trace of the grommet so we concluded that it had fallen out soon after the operation in November. Elis has since worn a hearing aid in his left ear.  Recently he has made comments about not hearing at times and I assumed the other grommet may have fallen out. I did try to get him to wear his right aid but he wasn't keen after a few days so I decided to leave it as I knew we had an audiology appointment coming up. Well today we went and the audiologist started by looking in his ears and she could see the grommet in his left ear clear as day! She couldn't see the right one though - I genuinely thought I was going crazy. But looking at her records she could confirm that his hearing had been down on the left ear. She explained that the ...

My favourite dude turns 4 in a few days time. As two of his sister's have just had their birthdays he is VERY excited to have cake for breakfast. As those who follow this page for Elis updates know, he is a very determined & cheerful soul. He is always trying to figure out ways to keep up with his siblings & peers despite his shorter stature & delayed speech. We have been blissfully safe in his own self awareness so far as he's not grasped what makes him different. But we are hitting that point now as two days ago he made it abundantly clear that he thinks he's going to wake up tall like his nursery friends on his birthday. I have spent time trying to explain that that won't happen as his bones grow differently from most people's, but he's not having it. Yesterday at nursery was the first time he couldn't do what the average height children doing. They were using little stilts & he had for the first time ever gotten frustrated ...